Support and Activities from Trusts and Charities - Kids With Arthritis New Zealand

Help In The Community – Other Organisations

The following is a compilation of support, advice, assistance and activities available for individual children and their families that is available from various public and private organisations in the community.

Other Organisations

1. ASB Trust

ASB Community Trust is an independent grant-making organisation supporting the work of not-for-profit groups in Auckland and Northland. The Trust makes grants in the education, arts, sport, recreation, environment, heritage, health and social services areas. Founded on the sale of its shares in ASB bank, the Trust has made grants worth more than $745 million since being formed in 1988. Their vision is to enhance equity and enrich society in Auckland and Northland. Any incorporated society or charitable trust in those areas can apply for funds, provided they are a not-for-profit organisation. http://www.asbcommunitytrust.org.nz/home

2. Aspirationz

The Burwood Academy of Independent Living is a dynamic organisation committed to improving the life experience of people recovering from serious injury and illness. Based on-site at Burwood Hospital in Christchurch, the Academy is dedicated to building a vibrant culture of research and learning. We are working to establish strong links to consumer organisations, universities and rehabilitation professionals. http://www.burwood.org.nz/about-us

3. Attitude Awards (ACC and Lion Foundation)

These Awards were set up with a commitment to celebrating the lives and achievements of people living with a disability.

http://www.attitudepictures.com/attitude-awards

4. Back-Up New Zealand Adventure Courses

Back-Up New Zealand is a national charity that has been created specifically to offer people with disabilities the same outdoor pursuit opportunities as people without disabilities. Back-Up New Zealand courses are used as a catalyst to break down barriers and push people out of their comfort zone, encouraging personal development and awareness.

Back-Up New Zealand is based in Hawke’s Bay and organises courses throughout the North Island, making the most of the stunning outdoor opportunities that New Zealand has to offer. http://www.up2date.co.nz/Useful+Info/Sport++Recreation/BACK+UP+New+Zealand.html

5.CCS Disability Action

We are here to provide support and strengthen communities so people with disabilities are included in the life of the family and in their community. A large part of their role is supporting people with disabilities to be ‘in the driver’s seat’ of their life, to achieve their own dreams and aspirations – by having the skills, confidence and resources to influence family, friends, colleagues, society and government. http://www.ccsdisabilityaction.org.nz/

6. Disability Resource Centre

The Disability Resource Centre is a not-for-profit community focused organisation committed to meeting the needs of disabled people, older persons and their families/whanau. http://disabilityresource.org.nz/

7. Koru Care Charitable Trust

Koru Care is a charitable trust. Since 1983, they have been working to bring joy into the lives of children with terminal illness or permanently disability. Each year they take children on overseas trips to places like Disneyland, USA, and Australia’s Gold Coast. Each group consists of 26 children and 15 caregivers with each caregiver assigned 2 children. The USA trip is 2 weeks in duration and the Gold Coast is for 8 days. The children that participate on the Koru Care Gold Coast Adventure are generally chosen as they are too ill to handle the long distance travel to California or the long days that this trip has. The age limit is 7 to 14 year olds.

Closer to home Koru Care have put on events for the children with our annual pantomime and Christmas Harbour Cruise and picnic. They also provide grants for the cost of flights for children that require medical treatment overseas that is not available in New Zealand.

Applications to Koru Care do not require input from ‘Kids With Arthritis NZ’.

http://www.korucare.co.nz/how-can-koru-care-help-my-child

8. Lion Foundation

The Lion Foundation is one of New Zealand’s oldest and most respected Charitable Trusts. In the past four decades they have returned over $600 million back to the community, supporting thousands of good causes right around New Zealand. Annually, they approved thousands of grants for community-based organisations across New Zealand.

http://www.lionfoundation.org.nz/about/

9. Make A Wish Foundation

Make-A-Wish is for all New Zealand children and young people suffering from a life-threatening medical condition, and aged between 3 and 17 years. A wish brings magic, hope and joy. The entire wish process – from the anticipation, to the wish itself, and the memories that it creates – provides a welcome diversion for children undergoing difficult medical treatments. A wish can also be a positive experience for families in challenging times.
Children who satisfy the medical eligibility criteria are eligible. There are no waiting lists at Make-A-Wish and all eligible children can receive a wish. http://www.makeawish.org.nz/apply/apply-for-a-wish

10. Orthotic Centre

Our Orthotic Centres in Auckland, Christchurch, Dunedin, Hamilton, Invercargill and Wellington deliver clinical services to private and ACC clients, and each Centre is a contracted provider to the local district health boards (DHBs).
The team conduct assessment, measurement, casting, and fitting of custom-made or prefabricated orthoses and orthotic footwear. http://www.orthotics.co.nz/Default.aspx?TabID=33519&LangID=0

11. Outward Bound – Activate 18+ years

Our adapted courses are suitable for people with a wide range of abilities who are independent, active and seeking adventure. In a safe and supportive environment, participants will try activities like sailing, kayaking, rock climbing, tramping, fun team-building challenges and more… http://www.outwardbound.co.nz/our-courses/adapted-18-years/

12. Parent to Parent

Parent to Parent is a national organisation working with families and children affected by disabilities, health impairments, rare syndromes and special needs. http://www.parent2parent.org.nz/

13. Riding For The Disabled

We help disabled people to build confidence and self-esteem, and increase their independence and well-being through therapeutic riding and horse care. Our Riders attend riding to achieve a specific goal, whether it is therapeutic, educational or sporting. Riding develops, improves and promotes, balance and coordination, posture and muscle tone, concentration, self-discipline and self-esteem, perception and spatial awareness, communication and social skills, independence and encourages decision making. NZRDA is an association of 56 Member Groups throughout NZ. http://www.rda.org.nz/about/

14. Ronald McDonald Family Retreat Families with a chronically ill child are often placed under immense emotional, physical and financial stress. To help relieve this burden Ronald McDonald House Charities along with various community groups created the Ronald McDonald Family Retreat. The houses offer comfortable, well positioned places for families with a chronically ill child to enjoy a holiday together, and have a much needed break from hospital and constant medical intrusion. An oasis of calm amongst the surroundings of the Retreat offer a memorable family holiday. http://rmhc.org.nz/what-we-do/ronald-mcdonald-family-retreat

15. Ronald McDonald House

The cornerstone of the Ronald McDonald charities in New Zealand, are the three Ronald McDonald Houses in Auckland, Wellington and Christchurch. Each year these houses care for the families of children undergoing hospital treatment at the Starship Hospital in Auckland, Wellington Hospital, and Christchurch Public Hospital. Ronald McDonald House programme provides a “home-away-from-home” for families so they can stay close by their hospitalised child at no cost.
http://rmhc.org.nz/what-we-do/ronald-mcdonald-house

16. Southern Stars Trust

Southern Stars is a Charitable Trust that is dedicated to providing a better life for special needs and disadvantaged children in New Zealand. http://www.southernstars.org.nz/Home/0,275,1532,00.html

17. Special Christmas Party

The Special Children’s Christmas Party, in association with the Cancer Society enlists the sponsorship of local business to provide an unforgettable experience for disabled and disadvantaged children in our community. The Special Christmas Parties are held throughout NZ. http://www.sccpnz.co.nz/index.php

18. Spirit of Adventure Trust

The Spirit of Adventure Trust runs sailing training trips on the three-masted, barquentine ship, ‘The Spirit of New Zealand’. Each year between 1000 and 1200 young people aged 15-18 years, with an equal mix of females and males, all total strangers, from a wide range of ethnic and social backgrounds throughout the country, participate in the Youth Development programme. The focus of learning for trainees is on teamwork and developing skills of communication, self-reliance, self-discipline, self-esteem, resilience, tolerance, confidence and leadership. http://www.spiritofadventure.org.nz/index.php?page=history

Each year in February, they run a special five-day trip for physically disabled young people (16 to 20 years old). This trip is subsidised by external funders so the cost to the individual is significantly less than the normal cost.

‘Kids With Arthritis NZ’ assists as the Nominator and forwards applications to the Trust on behalf of our members. Applications close annually at the end of September.

http://www.spiritofadventure.org.nz/index.php?page=special-sailings

19. Variety Club – Bikes 4 Kids

Each year Variety provides hundreds of children who have physical restrictions with much-needed specialised trikes, chairs and standing frames. Specialised bikes and trikes give these children the freedom to move. http://www.variety.org.nz/how-we-help/kids-on-the-move/mobility-equipment

20. Variety Club – Gold Heart Scholarship Programme

This support is available for up to three years to help children who are physically or financially challenged fulfil their dreams. This could include assisting with tuition fees, personal development, coaching, the purchase of training equipment, travel or accommodation. http://www.variety.org.nz/how-we-help/future-kiwi-kids/gold-heart-scholarships